News
Emeril Lagasse hosts Alpha-1 Dinner to Honor Kushner
Posted: Monday May 12, 2008 under News Announcements
Celebrity chef Emeril Lagasse will host and reserve his Miami Beach restaurant Sunday evening, May 18, for a dinner in honor of his late friend John E. Kushner.
AARC Says Patients Win in New Airline Ruling
Posted: Friday May 9, 2008 under News Announcements
Oxygen patients will have easier travel, thanks to a new ruling by the U.S. Department of Transportation (DOT) that says airlines must accept certain approved portable oxygen concentrators onboard flights.
Foundations Cheer Victory as DOT Mandates That Airlines Must Accept Carry-On Portable Oxygen Concentrators Aboard Flights
Posted: Wednesday May 7, 2008 under News Press Releases
Miami, FL – The US Department of Transportation has ruled that airlines must accept portable oxygen concentrators carried aboard by passengers, as long as those concentrators are approved by the DOT.
Foundation's Celebration of Life Had the Beat to Beat Alpha-1 -- to the Tune of $300 Thousand for Alpha-1 Research
Posted: Tuesday May 6, 2008 under News Announcements
MIAMI – With a theme of “We Got the Beat to Beat Alpha-1,” the Alpha-1 Foundation held its 8th annual Celebration of Life Friday, May 2, featuring two bands – including committee members Jose “Pepe” Ortega and Renato “Renny” Tirador – performing for donations, and a karaoke evening with attendees bidding to hear their favorite performers.
Alpha-1 Mother's Day Campaign
Posted: Monday May 5, 2008 under News Announcements
The Alpha-1 Foundation is once again launching its annual Mother’s Day Campaign! Surprise the mom in your life with a beautiful purple orchid greeting card and/or our Alpha-1 Scarf. Both are perfect for telling that special someone how much you care.
Gary Bain Dies at 68; Pioneer in COPD Patient Advocacy
Posted: Friday May 2, 2008 under News Announcements
Gary Bain, President and founder of the volunteer COPD online support group EFFORTS, died of pulmonary failure Wednesday, April 30 at age 68.
Anti-genetic Discrimination Bill Approved
Posted: Thursday May 1, 2008 under News Announcements
WASHINGTON—Companies would no longer be able to use genetic information like a person’s predisposition for breast cancer, sickle cell or diabetes to make insurance or job decisions under a bill passed by Congress on Thursday.
St. Luke’s–Roosevelt Hospital Supports the Alpha-1 Foundation in First Annual George Washington Bridge Walk For Lung Disease
Posted: Wednesday April 30, 2008 under News Press Releases
New York, NY—The James P. Mara Center for Lung Disease at St. Luke’s–Roosevelt Hospital is joining hands with the Alpha-1 Foundation to raise money for Alpha-1 research by participating in the first-ever Walk over the George Washington Bridge scheduled for Saturday, May 10th.
Talecris, Centric Biotherapeutics Sponsor 8th annual Celebration of Life Event: “We Got the Beat to Beat Alpha-1”
Posted: Wednesday April 30, 2008 under News Press Releases
MIAMI – The Alpha-1 Foundation will host its 8th annual Celebration of Life event this Friday, May 2, to raise awareness and funds for Alpha-1, a genetic condition that can cause life-threatening lung and liver disease.
Long-time Friend Offers Liver Donation to RI Alpha
Posted: Tuesday April 29, 2008 under News Announcements
SOUTH KINGSTOWN, RI — David Gitlitz didn’t think very often about the miracle of organ transplants until it became clear that he might need a miracle himself. And to the rescue came a very dear friend.
