Proveedores de cuidado de la salud
The Big Fat Reference Guide or “BFRG” is the cornerstone of AlphaNet’s health management and disease prevention program for persons diagnosed with Alpha-1 Antitrypsin Deficiency. With its emphasis on education of patients, their families and their health care professionals, it is considered the most comprehensive guide to living with Alpha-1 available anywhere. Further, ongoing prospective studies monitoring patient outcomes and healthcare utilization have documented the effectiveness of this program.
The BFRG provides detailed information specific to the condition Alpha-1 including such topics as medical assessment, testing and treatment, diet and nutrition, activity and fitness, the management of environmental risk factors, coping with Alpha-1, insurance and disability and much, much more.
For the Healthcare Provider, the BFRG provides detailed information and references that help in the evaluation, diagnosis, and management of individuals with Alpha-1. Please be sure to check the appendices in the BFRG for sample order sheets (for both inpatients and outpatients), long treatment plans, and other practical information that can facilitate the care of people with Alpha-1 that you follow.
The Big Fat Reference Guide on-line is quick and easy to use. It is available at www.alphanet.org. A simple registration allows the BFRG to be personalized to the specific needs of the user. Please be sure to sign up as a Healthcare Provider in order to have the most access to the most appropriate documents.
